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hypothyroidism following radioactive iodine treatment

PostPosted: Mon Jun 08, 2009 12:34 am
by stethascope
Hello I am 38 yr old female and had my total thyroidectomy on January 8th 2009 and was diagnosed with multifocal papillary carcinoma on Jan 26, 2009. Had radioactive iodine treatment in April and have been having difficulty regulating my thyroid since. Had low iodine diet and cytomel prior to treatment to lower thyroid. I am currently on synthyroid 175mcg once a day and cytomel 25 mcg twice a day and my last TSH was 11.4 I am exhausted all the time and my muscles are so fatigued I get cramps all the time in my hips and knees and low back. I just want to feel normal again. Just wondering if anyone else went through the same thing and how long it might take to feel "normal" again. Thanks to anyone with info. Greatly appreciated.

Re: hypothyroidism following radioactive iodine treatment

PostPosted: Mon Jun 08, 2009 4:26 am
by Jen1000
I know exactly what you are going through. It took about 1 year to get my TSH normal after surgery. I had a total thyroidectomy surgery for papillary carcinoma about 2 years ago. The first year was so frustrating and hard.

I started out on levothyroxine…didn’t work. My doctor eventually gave me both T3 and T4 (Cytomel and Synthroid). Don’t remember the exact dosages but it was similar to yours. It eventually worked but surprisingly I ended up going hyper and my anxiety when through the roof! So they cut it back. Now I’m on 150 Synthryoid and 25 Cytomel. This seemed to do the trick for me. It took awhile to get there. I was going into the doctor every two months initially to get my meds right. I hated that!

It’ll get better. It took awhile for my body to adjust. It’s amazing how much the thyroid controls in the body.

Re: hypothyroidism following radioactive iodine treatment

PostPosted: Mon Jun 08, 2009 5:08 am
by Rose
I've had similar experiences but my TSH levels were normal (around 2-3). I was on the synthetic thyroid hormones for years. I just felt tired and “not normal.” I also went through menopause…this didn’t help. My endocrinologist decided to put me on a natural thyroid hormone medication called Armour. It seemed to really help. This medication has both T3 and T4 hormones. Armour is derived from pig thyroids, sounds gross but it worked for me. You may want to talk with your doctor about this option.

Re: hypothyroidism following radioactive iodine treatment

PostPosted: Mon Jun 08, 2009 10:05 am
by stethascope
Thank you for your help, it's always good to hear about other's to see if you are doing okay. Much appreciated.